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26 April 2008
Should disabled people be deprived of challenges, holidays?
Putting this challenge together has taught me one thing, that I could not do it with my care team, who are paid under the direct payments scheme, but because I cannot pay them more than they are getting if there were working here, in my home, they are giving a lot of their time free. To you all, I say a very sincere thank you. In the picture L2R Muriel Armstrong, KAP Margaret, Clair & Pauline. Emmanuelle, my 4th team member is missing...
What I am trying to say is without the four carers mentioned I would not be able to do this challenge. I know that there are many other friends helping me make this happen, and they no that I cannot do it without them, to you also, a very sincere thank you. At the end of this blog, the final page, a full list of all who have helped me will made.
The point I am trying to make is, why can I not have 4 weeks holiday like everyone else does and have at least 2 of my carers paid for there time? I do not have family that I can go away with, I do not have informal carers which means, because the system has change, I cannot take respite. Question. Is this a fare system? Why can i not pay my cares for the true time they are giving on this E2E Challenge?
Should disabled people be deprived of challenges, holidays?
Putting this challenge together has taught me one thing, that I could not do it with my care team, who are paid under the direct payments scheme, but because I cannot pay them more than they are getting if there were working here, in my home, they are giving a lot of their time free. To you all, I say a very sincere thank you. In the picture L2R Muriel Armstrong, KAP Margaret, Clair & Pauline. Emmanuelle, my 4th team member is missing...
What I am trying to say is without the four carers mentioned I would not be able to do this challenge. I know that there are many other friends helping me make this happen, and they no that I cannot do it without them, to you also, a very sincere thank you. At the end of this blog, the final page, a full list of all who have helped me will made.
The point I am trying to make is, why can I not have 4 weeks holiday like everyone else does and have at least 2 of my carers paid for there time? I do not have family that I can go away with, I do not have informal carers which means, because the system has change, I cannot take respite. Question. Is this a fare system? Why can i not pay my cares for the true time they are giving on this E2E Challenge?
I could book a holiday in a hotel, lodge, caravan, cruise all around the £500/£600 mark and with saving and cutting back, could be affordable, but what is not affordable is the cost of taking with me 2 prefable 3 cares, thus meaning that a holiday, adventure, challenge of any sort is out of the question. This challenge may well be my last holiday. Should the state, my council, be made to put their hands in their pockets and pay for my carers to accompany me? I have asked companies and charities for help, but I have been declined as they only donate to charity and charity groups not individuals...
When I finish this challenge I am hoping that more doors will open, but can I accept t what is behind them? I would like to take on more challenges, adventures, but to be fare, I cannot expect my carers to give their time free again, and why should they? Why should I not have the right to attempt more in my life, even if I am over 60, but not been able to do so because I am in a wheelchair and cannot use my arms and hands, and need full personal care?
After the E2E I maybe asked to go on say, GMTV, you never no, I cannot do that without a carer with me, who will expect, and rightly so, to be paid for the full hours she does in taking me to London.
Am I just moaning or do I have valid points?
If you have an option on any of the points I have mentioned, then please email me or put them in the comments box. I will then get them and possible air them on the blog.
Bye for now.
