23 April 2008
A very frustrating day.
Today I have had a very low bad day, and if it was not for seeing a very close friend to catch up with all the news I think I would have just sat and cried…
When you are as disabled as I am, (to get a full rundown on my disability go to blog 4 October 07), and you have to rely on a support team to meet the every needs you have to deal with such as, eating, drinking, going to the loo, to name just a few of my daily needs, and you find that there is a gap in you care package that has to be filled due to sickness of two carers;. which in turn means making endless phone calls, text message, asking different people if they can help, then you find that have to stay in to wait a phone call from a nursing agency that just maybe able to fill the gap in, and yes they did. Thank you BNA; then you find that you do not have time to get on with any of the much needed training, and or organising the challenge; there are still heaps to do.
If you can have empty with me with all of this then you will no what sort of day I have had…The second one this week. I can only say that I am grateful to Muriel from KAP for helping me to put together the final bits of the jigsaw, I really do need her help, thanks Muriel; you might get close to how frustrating I am feeling right now.
Today is something I find happens frequently, and made my trip out in Alber yesterday, so very special.
Add to all of the above, if I do not get my team together, all of this work and planning, not only by me, but by other people, will have been all in vain, and that is making me very angry and frustrating. The E2E is so close but as things stand at the moment, in both time and arrangements, it might as well be a million miles away.
So today has been a very low day. I have really tried to get it kicked started but I have failed miserably...
I get emails telling me good luck, do not give up, you can do it, you no the sort of thing, I no that I can, but not without help, your help.
In my perfect world right now, my prince charming would come and do all of my paperwork, arrange my life, sort out my new mortgage when it comes through, pay my bills, tax the van, get it all set up, making sure that all that needs to go in, goes in, and I will get on with my training and writing this blog..
So there we have it, I told you I would share the good days like yesterday, with the bad days like to day. I have just had a good moan....
Speak again soon.
A very frustrating day.
Today I have had a very low bad day, and if it was not for seeing a very close friend to catch up with all the news I think I would have just sat and cried…
When you are as disabled as I am, (to get a full rundown on my disability go to blog 4 October 07), and you have to rely on a support team to meet the every needs you have to deal with such as, eating, drinking, going to the loo, to name just a few of my daily needs, and you find that there is a gap in you care package that has to be filled due to sickness of two carers;. which in turn means making endless phone calls, text message, asking different people if they can help, then you find that have to stay in to wait a phone call from a nursing agency that just maybe able to fill the gap in, and yes they did. Thank you BNA; then you find that you do not have time to get on with any of the much needed training, and or organising the challenge; there are still heaps to do.
If you can have empty with me with all of this then you will no what sort of day I have had…The second one this week. I can only say that I am grateful to Muriel from KAP for helping me to put together the final bits of the jigsaw, I really do need her help, thanks Muriel; you might get close to how frustrating I am feeling right now.
Today is something I find happens frequently, and made my trip out in Alber yesterday, so very special.
Add to all of the above, if I do not get my team together, all of this work and planning, not only by me, but by other people, will have been all in vain, and that is making me very angry and frustrating. The E2E is so close but as things stand at the moment, in both time and arrangements, it might as well be a million miles away.
So today has been a very low day. I have really tried to get it kicked started but I have failed miserably...
I get emails telling me good luck, do not give up, you can do it, you no the sort of thing, I no that I can, but not without help, your help.
In my perfect world right now, my prince charming would come and do all of my paperwork, arrange my life, sort out my new mortgage when it comes through, pay my bills, tax the van, get it all set up, making sure that all that needs to go in, goes in, and I will get on with my training and writing this blog..
So there we have it, I told you I would share the good days like yesterday, with the bad days like to day. I have just had a good moan....
Speak again soon.
